Distrofia muscular de Duchenne. Abordaje respiratorio y cuidados paliativos como estrategia de cuidados humanizados

Distrofia Muscular de Duchenne: Abordaje Respiratorio y Cuidados Paliativos como Estrategia de Cuidados Humanizados 65 10. Bach JR, Huerta-Armijo A, Dorta-Díez de la Lastra J. Evidence That No One Needs a Tracheotomy for Only Being Too Weak to Breathe. Glob J of Ped & Neonatol Car. 4(5): 2024. GJPNC.MS.ID.000598. DOI: 10.33552/GJP- NC.2024.04.000598. 11. Chiou M, Bach JR, Jethani L, Gallagher MF. Active lung volume recruitment to preserve vital capacity in Duchenne muscular dystrophy. J Rehabil Med. 2017 Jan 19;49(1):49- 53. doi: 10.2340/16501977-2144. PMID: 27630091. 12. Sheers NL, O’Sullivan R, Howard ME, Berlowitz DJ. The role of lung volume recruitment therapy in neuromuscular disease: a narrative review. Front Rehabil Sci. 2023 Jul 26;4:1164628. doi: 10.3389/fresc.2023.1164628. PMID: 37565183; PMCID: PMC10410160. 13. McKim DA, Katz SL, Barrowman N, Ni A, LeBlanc C. Lung volume recruitment slows pulmonary functiondecline inDuchennemusculardystrophy.ArchPhysMedRehabil. 2012 Jul;93(7):1117-22. doi: 10.1016/j.apmr.2012.02.024. Epub 2012Mar 12. PMID: 22421625. 14. Katz SL, Barrowman N, Monsour A, Su S, Hoey L, McKimD. Long-TermEffects of Lung Volume Recruitment on Maximal Inspiratory Capacity and Vital Capacity in Duchenne Muscular Dystrophy. Ann Am Thorac Soc. 2016 Feb;13(2):217-22. doi: 10.1513/Annal- sATS.201507-475BC. PMID: 26599476. 15. Molgat-SeonY, Hannan LM, Dominelli PB, et al. Lung volume recruitment acutely increases respiratory system compliance in individuals with severe respiratory muscle weakness. ERJ OpenRes. 2017Mar 14;3(1):00135-2016. doi: 10.1183/23120541.00135-2016. PMID: 28326313; PMCID: PMC5349097. 16. Katz SL, Mah JK, McMillan HJ,et al. Routine lung volume recruitment in boys with Duchenne muscular dystrophy: a randomised clinical trial. Thorax. 2022 Aug;77(8):805- 811. doi: 10.1136/thoraxjnl-2021-218196. Epub 2022 Mar 2. PMID: 35236763; PMCID: PMC9340020. 17. Bach JR, Mahajan K, Lipa B, Saporito L, Goncalves M, Komaroff E. Lung insufflation capacity in neuromuscular disease. Am J Phys Med Rehabil. 2008 Sep;87(9):720-5. doi: 10.1097/PHM.0b013e31817fb26f. PMID: 18716483. 18. Bach JR, Bianchi C, Vidigal-Lopes M, Turi S, Felisari G. Lung inflation by glossopharyn- geal breathing and “air stacking” in Duchenne muscular dystrophy. Am J Phys Med Re- habil. 2007Apr;86(4):295-300. doi: 10.1097/ PHM.0b013e318038d1ce. PMID: 17413542.

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